Today was step two in the process over at Shriner's. Galyna had a physical and a surgery consult. The surgeon took some more pictures, measured her scalp and walked Shannon through the procedure. Looks like Galyna will have four tissue expanders inserted the first go around.
We're still fairly sure that Galyna doesn't understand what the procedure will be like. Primarily because we haven't given her much detail yet; we want her to enjoy as much of summer as she can without a fear of another surgery in her too-young-for-this life. (Actually, nobody's ever really "old enough" for what she's been through.) You can tell she's nervous, though, as she gets squirmier than usual, and giggly. I'm not sure what her memories of surgery in Ukraine were like. We trust her experience here will be better, but if she has no memories of the past operations, or if those memories are bad, she'll have added fears going into it.
She is, as we know, healthy. She survived a blood draw, although there was much crying before the needle was even brought out. Promises of ice cream and the ever present toys were enough to calm her down.
Tierney and Amissa joined us for the excursion, which likely won't happen again. Delays led to a four + hour visit. We wanted them to see, and be somewhat familiar with, the hospital environment. They enjoyed the toys and games in the lobby, as well as the not-so-horrible cafeteria food. But it ended up being a long day.
So surgery is scheduled for August 24 ~ 10:00 a.m. There's one more physical, but that's the big day. Between now and then we have to also come up with the optimal way to get her to a better understanding of the procedure and the short-term impact to her life from it. She'll have to deal with no hair for a while, some discomfort when the expanders are filled and some obvious bulges in her scalp as the expanders, well, expand. This is an awful lot for a pretty little girl to deal with, but if there's anything we've learned about her it's that she's a survivor.
Thanks as always for the prayers and support. It is so very good to know we're not in this alone.
God bless,
Ron
10 years ago
Posts
