Wednesday, June 13, 2012
Summer!
Needless to say, this is much easier to pull off now than it was a couple of years ago when they all shared a room. Nothing says peace like separate bedrooms (one reason I think I'm generally a pro-borders kinda guy).
It's been interesting these few days observing Galyna and ruminating on the changes God wrought in our family over the past few years. Her last few months have shown remarkable growth in quite a few areas: school (she's up to grade level), family contributions (she's by far the most helpful in regards to chores) and physical development (if it wouldn't violate the copyrights of the musicians who recorded the song to which she danced, I'd upload a video from her dance recital so you can see the difference between the girl who once fell while waving "hi" and the graceful ballerina she's becoming).
Even the space between the "acting up" episodes is increasing.
Yet the pain, fear and distrust learned at the hands of abusers remain. In therapy, we have had breakthroughs that include finding out she has a hard time trusting us, doesn't believe this family is "forever," and sometimes wishes she was in a different family. Today she said she feels like she's a "bad person" because she gets in trouble sometimes.
Makes it hard to forgive (again) the abusers, the neglectful who scarred this little child.
Yet even this is progress as she'd not been able to admit this much mere months ago. I take more encouragement in looking back than I do in looking forward to what (I hope!) will one day be. Much as God told the Israelites to remember His goodness by looking back to what He did for them, I see evidence of His grace by seeing how much Galyna has grown in a mere 3-1/2 years.
If I can offer any encouragement to anyone who has adopted a troubled child it is that growth can happen. Find a good therapist. Read about the needs of children who've gone through what yours have (we have learned from Parenting the Hurt Child: Helping Adoptive Families Heal and Grow). Talk to others who've adopted hurt children. Stay true to the love which led you to adopt in the first place. Be patient, even through moments of frustration and hurt. Remember that you are in this to help the child heal. He or she needs you, even if (s)he doesn't yet realize it. And you're not alone, even if you feel like nobody around you understands what you're going through because they don't see the day-to-day, hour-by-hour swings.
Enjoy the good times, and as you see those multiply, rejoice and celebrate them with your child. After 3-plus years, we're getting to do this more often. As summer vacation follows a year of school, healing often follows pain. Not always as quickly as we'd like, and not always visibly or sans backwards steps - but it comes. At least that is what we're discovering, and lord knows, with the mistakes we've made along the way, if we can do this there's hope for anyone.
Sunday, November 27, 2011
Picking up from where I left off
Life in general:
Galyna got to experience a new side of life, too, this year attending her first two funerals. The first was a memorial service for Joe Szymanski, a family friend of Shan's family. Galyna had met him once or twice, but the somber nature of the service did get to her. Joe is one of a kind and is missed. The second hit harder - my grandfather passed away just shy of his 91st birthday this past August. Great Grandpa Joe was someone she knew a bit more, talked about quite a bit, and saw more often. This was also a full funeral, including visitation, mass and graveyard ceremony (including burial). (I'll blog more about that in a bit, when I'm ready...Grandpa Joe taught me a lot and is also very much missed).
These events were, while bittersweet (we know both are in peace) were also interesting to me as I watched Galyna - really all three girls - with their first taste of grief. We tried to explain what was happening, talk through the reality of life & death, and answer their questions. In some ways, though, it was most interesting to see Galyna's response. It seemed the sadness & grief drew her out somewhat more than we'd seen in the past. We weren't looking for encouragement at such times, but it was provided. She is finding ways to be open at times.
***
Galyna has also been continuing in her dance classes. It's been good for her coordination and motor skills, as well as giving her an outlet outside the home for gaining confidence. She enjoys performing as well as just the fun of dancing. Her recital is in the Spring...if you're local, let me know and I'll get you the 411 on the date/time.
She has also been taking swim lessons, which is also helping in the confidence and physical development. It's amazing the way her strength and coordination have improved - ahead of her other development, actually, which I guess I would have expected. She also likes to play outside, and is physical in her play. It seems to be working for her as she's by far the healthiest of the girls in terms of general illness.
***
We have been attending Grace Church since before we brought her home as long time readers know. Galyna has been doing well at church, taking part in Sunday School and enjoying the times my parents attend with us. She is very popular and liked - nay, loved - which has been a source of support & strength for us all. As far as things of faith, she is asking questions. As with all things, she is still working on understanding, and we're not sure how her background will affect her spiritual self as she grows. Needless to say, we just continue to pray she learns truth:)
***
At school & church, she is making friends well. Our only concern in that department is that she choose her friends wisely rather than indiscriminately. This concern is shared, of course, for all three girls. This is not a surprise as she is an outgoing girl who dislikes being alone. She has taken especially to a couple of girls, closing in on "bff" territory. Yay Galyna!
Looking ahead:
This winter we'll be looking at a potential 3rd round of surgery, which would be in all likelihood her last. More to come on that. We're also coming up on her third Christmas in the family (already? Time = flying, no?) and this is a naturally exciting time for all the kids. This spring we're planning a family vaca of a Disney cruise, and this will definitely be a first for Galyna which I'll report on here. Otherwise, we continue to grow, to take steps forward (and sometimes sideways or backwards) toward what we'll eventually be. But this is the lot of families, and I wouldn't change a thing.
Thanks as always for your love & support. Until next time -
Ron
Saturday, November 26, 2011
So the last year...
Galyna's tale hasn't ended, though, so I'd best be about the business of providing some updates.
Health:
This is as good a starting point as any. Galyna's second round of tissue expansion went exceedingly well. Her discomfort with the procedure was lower than it had been the first time through. She enjoyed being spoiled by the good folks at Shriner's once again. (I think she daydreams about further surgery so she can have ice cream for breakfast, do sand art projects with the nurses, and watch whatever tv shows she wants). Her hair coverage in the back is now about 70% or so, depending on what you consider as the baseline. Per the surgeon, there may be one more round to address a couple of spots on the front of her head, but we may be at the end of what we can do with the back; her skin can only stretch so much. That said, the difference between when we brought her home and today is amazing. With more hair, too, comes more confidence - which was a primary goal. We'll see what the surgeon says at our next appointment, sometime in the next week.
(For those of you who are of the praying ilk, this is also a potential challenge. We're not sure what this would mean for us, and wherever God leads is obviously fine by us; He has already blessed us more than we in particular deserve considering how many others need a lot more than we do. But our parents' heart is that if we can remove any barriers to her happiness, even if not yet encountered as hardships, we want to do what we can.)
School:
Ah, la escuela. She continues to make progress, and while still slightly behind grade level she is still closing the gap. There have been a few hiccups as she's started pushing boundaries a little bit - while also dealing with some fallout from her background. Galyna has a tendency to "study for the test" in most subjects, learning enough to get through the test, and then forgetting the information, or (in reading) getting through the pronunciation without paying attention to vocabulary or comprehension. These things will come as we instill within her the value of education, although this is proving to be a mildly unexpected difficulty. Those struggles aside, she makes friends easily and follows her teachers.
Family:
This has been an interesting year in terms of our family. Galyna has begun bonding a little more with Tierney, but sibling issues remain. She sees her sisters as competition quite often - quite understandable, considering, but for her sisters it's not something they're fully prepared to handle yet. One of the very few concerns we had when adopting Galyna was that the process would be difficult for her sisters, who were (and are!) very close best friends. It's been difficult for Galya to break through, either annoying Amissa by (as Amissa sees it) "stalking" her due to Galyna's dislike of being alone, or by pushing Tierney's buttons. But I may be making it sound worse than it is. All three girls have grown this past year, and do get along better. Tierney & Amissa have even learned through this a bit more about how to be open with us about what's going on, and about showing grace to someone still learning what it means to be in a family. For her part, Galyna is learning what it means to have sisters instead of other orphans competing for parents.
As far as our relationship with Galyna is concerned, the therapy helped move that along a little bit. She still shows signs of not having full moved through the preschool phase of development, so the play therapy needs to continue. Her progress, though, is noticeable. We don't want to diminish that progress. However, some frustration still exists. She hasn't fully moved past her RAD, and it is especially noticeable with Shannon. She doesn't show affection to Shannon except when asked to, and her trust that she is in a permanent situation isn't there yet. It is...hard, especially since she is showing some signs of softening with me. I ache for Shannon, who still wants Galyna to just hug her, or climb into her lap to snuggle.
Adding to this is the fact that in public Galyna shows few signs of this beyond occasionally being (still) overly affectionate with others (which, also, is difficult for Shannon and me to see; we want to encourage healthy relationships outside the family, of course, but it's not easy seeing the hugs you want being given to others more freely). This "public face" of things is different from our in-home experience, making it hard for some of our friends to understand some of our challenges.
That said - again, she has still been making progress. She had a difficult life, and is still adjusting to a huge life change. We are adjusting to a life change nearly as large. Things are progressing, and there are many more silver linings than clouds. We are really blessed as many things could be oh so much harder or more painful. She's still a sweetheart, still trying - and still growing.
This is getting long - and there's more, but I'll save that for next time.
Thanks for listening:)
God bless,
Ron
Friday, December 24, 2010
2010 - A retrospective
...when last we left the story, Galyna had her second surgery. After the gauze came off we saw, much to Galyna's delight, increased coverage of hair. It was so awesome to see her excitement when she saw how much more hair she had. She took her restrictions well, and it was good to see her schoolmates continue to treat her well.
February saw our first family vacation in a long time, where we took a week in Florida with Shannon's best friend (and her family) at the Magic Kingdom. We'd taken the other two to Disneyland a few years earlier, but this was the first time for all three at the big park in Orlando. We stayed in an awesome resort as guests of Tom & Becky (Tom's in the President's Own Marine Corps Band, so we were able to stay on site) and overall it was the most enjoyable weekend we'd had as a family aside from the trip to Ukraine to get Galyna:) Needless to say, the parks were all a big hit with the girls.
This spring saw Galyna finish first grade. Her English is still improving, although she needed a 2nd summer of summer school to continue her progress. If she came to the US the equivalent of 3 years behind, she's probably up to 1-1/2 years behind. It must help having chatty sisters.
This summer was an interesting experiment. I returned to Donetsk with my church's mission team. Galyna had some anxiety and openly wondered (and went on record against this) if I'd bring back another child. I think she was relieved when I came back with only stories, pictures and souveneirs.
During the summer we were able to take Galyna back to Chicago for my grandfather's 90th birthday. It was a great time - we saw all the family, including each of my brothers (with associated gals) and spent some time with one of the finest men I've ever met. I'm very glad all the girls have a chance to get to know their great-grandpa.
This fall started 2nd grade, as well as a new adventure. We started therapy with Galyna, and have an official diagnosis of Reactive Attachment Disorder. There is a secondary diagnosis we may have to deal with too, as she appears to be symptomatic for attention deficit too (although that may be due to the RAD, meaning we need to treat the RAD to find out if she also has attention deficit disorder.) This is not at all a surprise as one of the key components of RAD is indiscriminate sociability. She has always shown greater affection outside the family (e.g., hugging strangers and non-family members much more often than those of us in the family) and refused to even show any unrequested affection until just recently. Having the diagnosis is a big win, though, and we are starting treatment which should resolve the RAD pretty much completely.
Overall, she is doing okay in school. She is still behind grade level but progressing at pretty much the textbook rate. Her behavior has continued to improve, although it offers challenges. Beyond the language differences (she is still not able to explain quite everything she's thinking, which makes diagnosing problems tricky) she still shows signs of manipulation from the orphanage days. Not unexpected, but she's good at playing to an audience (i.e., her behavior at home does not match that in other forums at times.) Her honesty has improved, though, which is another big win. We take it as a sign that she's starting to trust more in the permanence, as well as starting to realize that deception leads to trouble in a way honesty doesn't. The incidences of jealousy of her sisters have also decreased, and her oil/water moments with Tierney are fewer and farther between. In all, the three girls get along better - in fact, much like sisters. Over time, I suspect we'll get the rest of the way through the trouble spots. And, truth be told we are a lot further along than we were two years ago. God has been incredibly gracious in helping us to form into a family. We have far more ups than downs, although the frustration can be deep on all sides. The day her English is fully caught up will be a great day indeed.
Recently, Galyna also started round two on her hair restoration surgeries. The expanders are in and we'll start filling them soon. We're not sure if this is the last round or not, nor exactly how much restoration this will give her, but it should be of good benefit. It's amazing work, though, and we can't say enough about Shriner's. To get all this for free, by staff who are incredibly caring and gifted - God is indeed good. Our only complaint is every time we take her in she comes home with more gifts/toys; we're running out of places for them! And, sad as her history is, it is also nice to see people make her feel special - even in undesireable circumstances.
As to her faith...we're still not sure where that is going. As with the other two, she will obviously be free to make up her own mind. But I can't yet tell how much she believes vs. how much she parrots what others say. This is true for all the girls, but I think Galya's English makes it harder to discern. We only hope to give her the foundation to make wise decisions in faith as in all things.
Until the next time (and I'm hoping it's not another year) - thanks for your prayers & support. They continue to be a blessing to us.
God bless, Merry Christmas and Happy New Year!
Ron
Tuesday, December 29, 2009
Christmas & Surgery
She enjoyed the time of visiting family and unwrapping gifts. She also took part in her very first kids Christmas program and appeared to remember all the words. Unfortunately, she ended up on the far side of the choir from where I was sitting so I ended up not being able to see her as much as I'd have liked. (Her sisters did a bang up job too, which I sha'nt forget.)
Now that Christmas has passed, though, we came upon Galyna's second surgery date - yesterday. For those of you new to the story, Galyna had four tissue expanders inserted into her scalp a few months back in order to help grow some new hair-follicle-containing skin which can replace some skin grafts on her head. Yesterday they removed the insert, and stretched the skin out to cover the graft area. The surgery went very well, and although we can't see her scalp for the turban of gauze covering her head, we trust the surgeon did quality work. There is still a chance the tissue won't have good blood flow, but for now things are pretty good. Her spirits are up, she has energy and the pain is non-existent.
She'll be on restricted activities for another six weeks to let her scalp heal, which should take her up to the mid-February trip to Florida. That didn't stop her from playing Candy Land and basketball with some teenage boys who came up with a group of Iowans bearing new toys/games for the hospital. She enjoyed showing them how to do sand art, and throwing an inflatable ball around. She pretty much has the run of the place (not many other kids on the floor) and the boys pretty much loved her to death. Typical for a Stewart gal, actually:)
It was interesting, and a bit creepy, to hear that some of her initial grafts were placed directly onto the skull, with none of the tissue between graft and bone which would normally be there. It was a reminder that there is still so much we don't know about her former trauma or treatments. It raises a few risks of the tissue not "taking" as well as it should, but we'll just let God take care of that.
As always, thanks for the thoughts, prayer and encouragement. The challenges remain (albeit in reduced or different forms) and the benefits are growing. Our next focus is going to be working on getting her to understand that this family thing is permanent. She still seems fearful of having to go back to Ukraine after some amount of time. It's not fun, but I can certainly understand how someone who's been abandoned multiple times might be waiting for the other shoe to drop. It's amazing how many challenges resolve to reveal another set, all of which are understandable based on what she's been through.
That's the latest; I hope your Christmas was merry, and your New Year is a blessed one.
Thursday, December 17, 2009
Gotcha!
It's been a fascinating, wonderful, challenging and blessed year. Thanks to all of you for your care, prayers and encouragement. It means so much to our family that you are sharing this journey with us.
God bless -
Ron
Tuesday, November 17, 2009
The First Autumn
The family is continuing to bond, a process that will take the better part of many years. Amissa & Galyna get along pretty well most days, although there is some friction between (rules-oriented) Tierney and (still-learning-the-rules) Galyna. We look at it as a great opportunity to teach Tierney grace & compassion while continuing to help Galyna adapt to her new family/culture. It's been a wonderful thing to see how the bigger family has led to growth in all the kids, not just Galyna. Seeing Tierney & Amissa, for instance, get upset at the local water park when some boys were teasing Galyna showed a deep compassion and love for their sister. (And seeing Tierney NOT deck the boys showed a growing patience on her part; there was a time in daycare - years back - where she hit a boy who was teasing Amissa. She was promptly put into a timeout. Later that afternoon, the daycare provider came along to see Tierney once again in the timeout spot. When asked why she was sitting there, Tierney said something along the lines of, "I hit
School continues apace, and Galyna is starting to pick up some reading skills. Her verbal English has long been ahead of her written English, which is natural. It's fun to see her starting to catch up. She's also popular at school and we see her giving (and receiving) many hugs from classmates when we pick her up at day's end. The only downside is she's on phy-ed & recess restrictions while the implants are in. It's a blessing to have teachers willing to be creative in helping her remain engaged anyway. Her favorite subject is art, and she's said a few times now she wants to be an art teacher. (Heh - as I type this she's pulling out colored pencils and paper. Call me Nostradamus.) If patterns hold, we'll have Tierney as our dramatic/performing arts daughter, Amissa as our gymnastics/swimming daughter, and Galyna as our visual arts daughter. Which should make logistics fun when they're all involved in actvities.
Galyna's treatments continue to progress. Her last hospital appointment went well, and it looks like the surgery to remove her implants will be December 28. That lines up well as it allows her to get through Christmas, as well as to recover in time to not miss any school. Of the four implants, we've finished filling two, and the other two are 1/2 - 2/3 full. To my untrained eye, the net result of this should be an improvement of hair coverage of 50%+. She's tolerating the saline injections much better now that we're finished with the two ports on her neck, which were always the painful ones. What I find myself wondering about is whether she'll want to go back for a second set of procedures when she sees the results of this one.
This is not to say there aren't still challenges, although things are smoothing out. The experts tend to agree that after 6 months you start to see real breakthroughs in bonding and we certainly have. She is starting to feel more comfortable, although there are still times it seems she's not sure of what's going on (or what's expected of her.) We have managed to work through some of the ... "survival habits" she picked up in the orphanage. As we come up on the one-year anniversary of the trip to Ukraine to bring Galyna into our family we remain grateful for the opportunity God provided.
As always, we thank you too for your prayers and support.
God bless,
Ron
Tuesday, September 22, 2009
Summer Wanes, Procedures Continue
Since we last spoke (ha!) here we've had a few new experiences for Galyna. Aside from the needles and saline (more below) we introduced her to the following:
- Camping: Okay, she's been camping before, but this was our annual family camping trip to the Wisconsin Dells' Jellystone Campground. Yeah, it's campy (pun intended) but it's fun. Also, when you go over a September weekend you pretty much have the joint to yourself. On a side note, Tierney appears to be getting too "old" for this campground. I've been doing a bit of photo labeling and sorting of late, and watching how much the girls have grown...better stop now before I get eye moisture on my keyboard.
- First Grade: this is Galyna's first year in everyday school. Last year she was in a couple of school-based programs the days she wasn't in kindergarten, but this year she has all-day/everyday class with the same teacher and classmates. Conferences come up Thursday evening, so we'll see how she's doing. She was fairly nervous about homework, although why that would be we don't know; her sisters rave about homework and want to get lots. Maybe she's hearing things from other kids!
- The Great Minnesota Get-Together: I'm not sure Galyna has yet recovered from the incessant over-stimulation that is our state fair. From games and rides to food and animals, she saw more of pretty much everything than she ever had before.
- Church: Yeah, she's been going since we adopted her, but this summer she was in the service on Sunday mornings since children's programming was a "one hour or the other, but not both" option for us. It'll be interesting to hear, as she gets better at expressing herself, how she perceived this.
I'm sure there are other things I'm missing, but this is already looking to be one of my (in)famously verbose posts.
On to the medical portion of our show. We've had the opportunity (challenge? distress? stress?) of a lifetime, twice since our last hospital visit, to inflate Galyna's tissue expanders. It can't be a good sign when she starts crying hard and tightening up long before I even pull the needle out of the packaging. What is hardest for her is the inflation of two ports on her neck (which inflate expanders on the sides of her head) and the discomfort caused by her stretched skin over the two days or so subsequent to each expansion. All of which I completely get. The last time, she even said she wanted to have them removed and forego hair for the rest of her life. Fortunately, the two ports on the top of her head don't cause her as much trouble, so by the end of the procedure she's generally calmed down.
Aside from the obvious pain/discomfort, there are also starting to be some aesthetic concerns. The expanders lift the scalp tissue, which makes Galyna's head look very "lumpy" and not round. She sees this as "gross" and "ugly." Which, again, I understand. It has to be so very hard for her to see what we do, which is the end game. Her immediate pain is the hard part, and knowing she won't fully grasp the benefits of this until months (or years) from now is difficult on all of us. But. We persevere.
We do this because the procedure is a blessing from God; Shriner's care has been excellent, and the gift of free procedures is humbling. We're not "fixing" a broken doll, but Shriners is helping us heal a hurt child. We don't minimize the pain she feels now, but we know she'll at some point have part of her past healed from this. We also persevere because we want for her the best life possible, and although we'd like to think she'd always be treated normally despite having physical differences we're not so naive as to believe that's reality. She's always been beautiful to us; we want her to be beautiful to herself too.
So as you go through your Thursday evenings these next few weeks, please remember us in a prayer. I'm sure Galyna will appreciate it, even if she doesn't know it's happening.
God bless,
Ron
Thursday, September 3, 2009
Post-Op Update
Galyna was not thrilled, to say the least, with the whole needle part of the experience. She hung in there, though, and the tears flowed more slowly (and quietly!) once she realized it wasn't as bad as she feared it might be.
The process is to add more saline to her implants each week, then revisit the hospital in a month to gauge progress. Then we'll discuss when to finish the procedure by taking the expanded tissue and using it to cover the areas of her scalp which are currently covered by (non-hirsute) skin grafts.
In the meantime, she's on full restriction of physical activity at school. Both gym and recess will have to be monitored for her as she can't do anything to risk head injury. The playground, anything involving objects flying through the air, running, jumping, etc. That could very well be the hardest part for her, and it will last 2-3 months. Fortunately, the teachers at the local school are great, and will be helping to give her options that keep her engaged with the rest of the class, yet protect her head from injury.
Speaking of school, last night was open house night. Galyna (and her sisters) met teachers, hugged people not seen in months and displayed a bit of apprehension at the thought of homework. Well, Tierney and Amissa weren't at all nervous about that, but Galyna is. Her speaking is coming along well. She's to the point we understand what she's trying to say, but are correcting grammar and vocabulary. Her reading is behind, and she still struggles with focus on certain words and letters. But even there she's further along than she was before the summer. (Honestly, with a pseudo-writer/avid reader/grammar geek for a father - not that you can tell from this blog - and avid reader mother and sisters, Galyna has zero chance of getting through life unable to read and write. Whether she likes it or not!) We're looking forward to seeing her blossom this year as she gets into the swing of things.
There are other concerns we're dealing with, naturally, due to the nature of adopting a previously abused, different cultured, institutionally raised child into a family like we've done. The good news is the issues are new, meaning many have been resolved. Life continues to be an adventure, and even in the tougher spots (squabbles with sisters, etc...) we wouldn't change a thing. The blessings outweigh the pain, and even the pain is a blessing at times.
I could go on about how pain can be used for evil, or it could be a necessary part of restoration, healing and redemption. But that's a bit deep for an 11:00 pm post. As always, thanks for prayers, support and love.
It's greatly appreciated. Always.
God bless,
Ron
Monday, August 24, 2009
Surgery Day
A few months ago we found that Shriners accepted Galyna's case. The procedure they would perform is called tissue expansion, which is basically the placing of saline-filled "balloons" under the scalp in areas where she has hair coverage. The amount of saline is increased over time, which stretches the skin. After a while, there is sufficient extra skin, with hair follicles, to cover areas on her scalp where there is no hair currently.
It's genius, really, and especially effective for this type of situation.
We showed up at the hospital today ~ 8:00, and the two-hour pre-operative process was fairly straightforward. There was a quick shower (did not see that on the pre-op prep instructions, or we'd have done that at home last night), the taking of vital signs and the ceremonial (or not) shaving of her head. After that we went into pre-op, where she was allowed to select her own scent (strawberry-kiwi) for the happy-sleepy gas, as well as the color for her bandages (pink.) From there the surgical team took Galyna into surgery, Shannon took Tierney & Amissa to their cousin's for a few days and I headed to the waiting room. Just under three hours later, Shannon returned and Galyna came out of surgery. The timing was propitious; they waited until Shannon and I ran down to the cafeteria for a quick lunch to let us know we could go see her:)
They placed four tissue expanders in her scalp, and clipped off one smashed fingernail (another trauma from her prior life.) As I type this, roughly 4 hours after she came out of surgery, she is just now starting to awaken. She's nibbling on crackers, watching cartoons and coloring her very own floppy hat. She's also going to color a baseball cap for her bear, Ashley, who kept her company through surgery. Loyalty like that must be rewarded.
The rest of this evening will be some more clear foods, rest, cartoons, rest, visits from my folks and maybe another friend or two, followed by more rest. They have placed Galyna on a PCA drip, which allows for her to get a boost of pain killer if she needs it, but so far she's been showing no signs of pain. Post-op narcotics and residual anesthesia seem to be taking care of that. Her energy will return in fits and starts, and in about 48 hours she should be back to completely normal.
The next event in the process is a follow-up appointment in early September where we learn how to add saline to her expanders. That will be interesting. My prior experience at a plasma donation center will come in handy, although I never had to stick a relative before. I just hope to earn some good brownie points by not having my wife do it.
Thanks, as always, for the thoughts, prayers and support. They are definitely felt and appreciated. With the way we've seen God work through all this it's obvious they are effective too.
God bless,
Ron
Thursday, July 2, 2009
The Latest From the Good Doc's
We're still fairly sure that Galyna doesn't understand what the procedure will be like. Primarily because we haven't given her much detail yet; we want her to enjoy as much of summer as she can without a fear of another surgery in her too-young-for-this life. (Actually, nobody's ever really "old enough" for what she's been through.) You can tell she's nervous, though, as she gets squirmier than usual, and giggly. I'm not sure what her memories of surgery in Ukraine were like. We trust her experience here will be better, but if she has no memories of the past operations, or if those memories are bad, she'll have added fears going into it.
She is, as we know, healthy. She survived a blood draw, although there was much crying before the needle was even brought out. Promises of ice cream and the ever present toys were enough to calm her down.
Tierney and Amissa joined us for the excursion, which likely won't happen again. Delays led to a four + hour visit. We wanted them to see, and be somewhat familiar with, the hospital environment. They enjoyed the toys and games in the lobby, as well as the not-so-horrible cafeteria food. But it ended up being a long day.
So surgery is scheduled for August 24 ~ 10:00 a.m. There's one more physical, but that's the big day. Between now and then we have to also come up with the optimal way to get her to a better understanding of the procedure and the short-term impact to her life from it. She'll have to deal with no hair for a while, some discomfort when the expanders are filled and some obvious bulges in her scalp as the expanders, well, expand. This is an awful lot for a pretty little girl to deal with, but if there's anything we've learned about her it's that she's a survivor.
Thanks as always for the prayers and support. It is so very good to know we're not in this alone.
God bless,
Ron
Wednesday, June 17, 2009
June-ish Update
I'm currently in the midst of an experiment. Take Shannon out of the country (to India, to be precise) for 15 days. Add one mama's girl who has yet to spend a night away from both her adoptive parents. Stir in a daycamp for her sisters and a need to work from home for her father. Observe how she handles the relative alone-ness and quiet of the house.
So far? So good. She's handled it with aplomb, although there has been some help in the form of Grandma and Grandpa O'Malley visiting Sunday through Tuesday of each week so I can get some office time. I think she likes the time alone with us too.
She survived the school year well enough, although she will need summer school. Her focus is more sporadic than that of her sisters, so she still doesn't have her letters down. Her verbal English is far ahead of her written, which doesn't surprise. She also seemed to enjoy being at school - although her dinner conversation usually related about recess and lunch more than the three r's.
Her general behavior has improved as well. Galyna seems to be getting better about understanding "the rules" and is conforming to them better. There are still a few side-effects of her background and delayed development we need to work through, but progress is definitely being made. Early on (as I think I mentioned) it seemed she was working her way up the developmental ladder in two-week increments, pushing new boundaries pretty regularly every 14 days. In the past couple of months, that has leveled off quite a bit. One of the things we were told often was that there was usually a big step forward in stability ~ 6 months in. That seems to be right on track.
We also took her on the first road trip to Chicago so she could meet my Mom's side of the family. She very much enjoyed that, and even got along famously with Grandpa's dog. Galya's not been much of a fan of dogs at all, so that was good progress to see. Overall, her skittishness and propensity to flinch away from movement have decreased. I count this as a growing comfort level.
Oddly enough, another sign that tells me I think she's growing more comfortable with us is that she's started talking about her life in Ukraine more. She speaks of how she misses her friend Katya, how she wants to go back and visit, and how she wants to see pictures. This past weekend, she even started talking about her "mommy and daddy" (really, her guardians since she never knew her birth parents in Ukraine) and how her mommy mistreated her. Even this story had new elements as Galyna spoke of being put in very hot water, then being put with the pigs. I have no idea if this is memory or if this is just her repeating what she heard others say about her story. The hot water is a new element, but it would make sense to this medical layman; her scars never seemed quite consistent with just animal bites to me. But again, I'm no expert.
Either way...still ticks me off to know how she used to be treated. And, we'll likely start her into counseling sooner than originally thought so she can work through these in a more healthful way. I also see some new work in helping her understand the concept of family, and what it means to have a mother and father. She still seems to think that those are the people taking care of her. That too will come with time. Really, though, I look at this as a positive. She feels comfortable enough with us and her stability that she can talk about Ukraine again.
Progress is coming in unpredictable fits and starts, but it is coming. Next big milestone is the July 2nd visit to Shriner's. I'll update for sure then, if not sooner.
Thanks for your patience!
God bless -
Ron
Thursday, April 9, 2009
Adopting a Sibling
Adopting a sibling can change your life. It can change your life because they don't know your family ways or how they act. It also changes your life because there's another family member to be with and love. It can also change your life because there's another voice laughing when there's a joke. That's how your life changes once you adopt a sibling.
She has to learn our family ways. One time she dug her chin into my arm, and lots of times when she's upset she makes mean glares and faces at Amissa and I. Sometimes she STOMPS to her bed when she's upset and just lays there while she cries. And whenever she has a straw, she slurps and makes bubbles in her drink. That's why she needs to learn our family ways.
There's an extra family to love. Because there's another person in the house, there's another person to live with, and one other family member to snuggle with. And another person to laugh and have fun with. Now there's another family member to love.
There's lots more laughter. She's funny and makes funny faces. There's another voice laughing when something funny is going on. And somtimes she says funny words or talks in a funny voice. That's how there's lots more laughter.
It's hard work adopting a sibling. There's another person to live with, another voice laughing when there's a joke. And there's another person to snuggle with and love. It's rough and lots of hard work, but I'm so GLAD she's in MY family!
I like this essay because it gives some insight into what Tierney felt about the adoption. I typed it as she wrote it; this is unvarnished eight year old. And like any good writer, she left the best for the very end.
Friday, April 3, 2009
The Consult
We sent in our application and photos a couple of weeks ago, and the initial screening appointment was set for yesterday. The surgeon took a look at Galyna's scalp, and they took some pictures. We didn't talk much about her other scars, but the surgeon (and this is the good part) said he thinks they have a reasonable chance to help with her scalp. So, we're in - at least for another step. July 2nd we'll go back and Galyna will have a more thorough exam and physical before scheduling surgery.
It looks like the approach on Galyna's scalp will be to use a process known as tissue expansion. In a nutshell, small "balloons" are inserted under her skin, and over time are filled with salinated water to expand the skin. This "extra" skin is then used to replace what is now the grafted area.
Downsides: discomfort, length and number of treatments, shaved head required, appearance is altered as the balloon inflates.
Upside: long-term best way to get hair coverage as it uses scalp skin (with hair follicles) for the coverage.
So, while it doesn't appear to be easy or simple, it seems the most effective.
That said, it's easier for us to contemplate than for her, I'm sure. We haven't yet (but we will when surgery is scheduled) talk with her about the procedure. She was obviously very nervous to the point of giggling through everything just having a doctor there. It helped that there were no needles, but I'm sure she remembers some of her past surgeries. In Ukraine she had surgery on her scalp last spring, so hospitals in general can't be exciting for her.
So, as far as our concerns go, dealing with her post-surgery healing and with filling her expaners from time to time (yes, they will trust us to do this!) and her overall antipathy toward all things medical would top the list. The one we had been worrying about - whether Shriner's would take on her case - seems to be behind us now.
God is good:)
God bless,
Ron
Saturday, March 28, 2009
Big News!
That's the big news. Other news...Galyna likes staying at Grandma and Grandpa O'Malley's house. First nights away since we brought her home went well - although technically she was not alone. All of us went on the getaway, which was nice. I hadn't been up to the in-laws' place in over a year and I enjoy the quiet of the lake place. (Okay, it's quieter when the girls are asleep, but still.) There are so many more stars visible, the company is fantastic...even the drive is nice. Shannon and I each believe we're blessed to have two sets of great in-laws. And the girls love having two sets of fantastic grandparents.
Well, Galyna has three sets as Gib and Tina are honorary grandparents, having been the ones who brought back her story and having been so loving, encouraging and helpful during this whole endeavor.
When Galyna was asked in Ukraine what she thought America would be like she said, "family." In that way, she's been blessed even more than she knew.
God bless -
Ron
Wednesday, March 11, 2009
The Latest...
- Galyna has started her first sports involvements, taking gymnastics and soccer (wait, since she's European, we'll call it football.) We're hoping these help her with her large motor skills and environmental awareness as these are not well-developed in her yet. For instance, she fell over once from waving at Shannon and saying, "hi mommy!" She's a strong child, and her fine-motor skills are good, so we think this is just a matter of exposing her to more opportunities to run, jump and play in places where there are things to climb on and things to avoid. On the other hand, this will probably lead us to a Thunder game this summer. No offense, but it can't be as fun as a Shakhtar game.
- The first parent-teacher conference went well. Galyna is well liked, and learning much. Her English is improving to the point where we can understand her, even though her grammar is unpolished. If we've gotten to the point that we're making her rephrase requests in the proper grammatical form, we've moved past comprehension - which is a good thing. Her classmates are curious, naturally, about her scarring, but so far little to no outright cruelty. We're blessed in that.
- Speaking of her scarring...we are working on the application to Shriner's to see if they'll be (a) able to take on her case, and (b) able to help remediate some (all?) of the scarring. We're particularly concerned with the graft on her scalp as it splits and bleeds very, very easily. We're not sure it's growing at the same rate as the rest of her scalp, or whether it's not thick enough. But we're also not medical doctors, so just want it checked out. If Shriner's is unable to take on her case, we'll start looking elsewhere - for both another hospital and funding.
- Galyna is fully American. She is now often the first to ask to watch TV or play on the computer. I guess we can say she's acclimating to American culture quickly. You know it's bad when I, of all people, am the one telling her she wants to watch too much TV.
As always, thanks for your prayers and support.
God bless,
Ron
Sunday, March 1, 2009
Updates R Us
I uploaded some more pictures to Facebook for your perusal.
This album shows pictures of the girls' dance recitals. Galyna was able to watch her sisters dance this past January, and I'm guessing at some point she'll want to take dance lessons too.
The second album shows Amissa in her traditional Ukrainian dress, which we picked up for her in Donetsk. I think I promised to share pictures of this outfit, so here they are!
The final album includes pictures of the girls at their "Jump Into Reading" awards ceremony at school. They all received medals for reaching reading (or, in Galyna's case, being read to) goals. Tierney and Amissa also entered thematic sculptures, and each won first prize for her age group. I was rather proud. Still am, actually.
Other updates on Galya: She's continuing to grasp English. She has reached the point where we can understand her fairly well, although obviously it's still a work in progress. She's settled into more of a routine, although she's still pushing a few boundaries.
She no longer wears her hat in public, by her own choice, so she's appearing even more comfortable in her own skin - literally. We will need to get her in to see a reconstructive specialist soon as the skin on her head is tending to split frequently. We think the graft there isn't growing as quickly as the skin on the rest of her head, which is causing more tears.
Galyna went to her first gymnastics class yesterday. She seemed to enjoy it, and is excited to go back. We think it will help her develop her muscle control and coordination, as well as provide an outlet for her energy. We have her signed up for soccer in the summer, too, so it's full steam ahead for the "typical American over-committed kid" immersion. (Kidding - the girls don't get too many things, even if they want them; we don't want them over-scheduled.)
Thanks for the continued prayer/support. She's growing and acclimating fast, and we see more of her personality bloom each day. To date, we're still very much ahead of the game with many more positives than challenges. God is indeed good.
God bless,
Ron
Tuesday, February 10, 2009
So where've we been?
Galyna has seemed to adjust well to school. Her English is getting much better, and she is speaking very little Russian by now. We would say her English is at a toddler-esque level, with sentences structured like, "please Galyna has cereal?" She is learning well how to follow etiquette rules, like asking to be excused from the dinner table, saying, "excuse me," "please," and "thank you" appropriately. And best of all she likes school. She's even stopped wearing her hat in school, for the most part, meaning she's comfortable with who she is. There are a few kids who say things about her scars, but her sisters are quick to jump to her defense.
I think having her in school five days a week is helping her adaptation and her language skills. She's certainly getting more conversation practice than she would if she were at home. Play time at home is still more divided than not, as Tierney and Amissa play together using intricate and very verbal "scripts" they make up. Galyna isn't quite skilled enough in English to keep up, so she's often found coloring while the other two play. Tierney and Amissa do try to include her, but Galya self-selects coloring over play quite often.
She is popular at Sunday School, although we're fairly sure she's not grasping the concept of church quite yet. She enjoys going, and is happy to see her teachers.
The one surprising thing we've noticed is that she completely shuts down around Russian speakers, not even acknowledging them when they talk to her. Her translators at doctor's appointments, for instance, have not been able to get anything out of her; she ignores them completely. We're not sure, but we suspect there's a latent fear of going back to Ukraine. She's adamant about being an American, and her home is in America. She shows little interest in things Ukrainian, which I guess shouldn't surprise us. There are signs she's not quite sure this whole arrangement is permanent, and that would seem natural for those raised in an orphanage, especially those with an abusive/"neglective" background like hers.
Her emotions have stabilized somewhat, although she still flips switches faster than anyone I've ever seen in my life. It's fun to notice she is starting to feel more comfortable, although that comfort is leading to boundary testing. School and Sunday School teachers are seeing the brunt of it now, but we see some at home. She hates being told she's done something wrong, though (she shuts down or breaks down completely at any sign of discipline, even going so far as to try and ignore us and hope we go away - ha! not working with her Irish mother) so I expect this phase won't last too long.
Overall, more good than bad. There are frustrating moments, still, but she's understanding us pretty well. We're understanding her more each day, and as I said she's feeling more comfortable here. We hope that soon she starts to realize we're in this for the long haul, and some of her defenses will start to go down so we can teach her even more, and more effectively. Her smile and laugh are still contagious, and her sense of humor is starting to show. All in all, a good couple of months.
We hope all is well with you, and more will be updated as we continue on this little adventure of ours.
God bless,
Ron
Oh! One more thing. It's been fun too having people ask about our experiences. Sharing this story has been a blessing to us; if you have any questions at all, don't feel like you're intruding to ask.
Wednesday, December 24, 2008
Christmas Eve
Frankly, with the focus in Ukraine being on the adoption, we missed all the ramp-up to Christmas. It's the strangest feeling Christmas I've been a part of in that until this week, I've barely given it a thought.
It should be fun to watch Galya open presents that are FOR HER! I can't imagine she's had many opportunities in the past. Everything is so very new, and adopting in the holiday season accentuates the newness of everything. It makes cramming in last-minute Christmas shopping worth it.
One of our challenges will be the time with family. This is not to say we don't want to introduce Galya to the broader family; on the contrary, we obviously do. But adoption advice we were given by multiple adoption "professionals" was to keep things low-key in the first few months so the child doesn't end up not knowing who he/she is bonding with, or so the child doesn't end up not bonding altogether. Low-key is impossible at this time of year. We'll be trying to manage it carefully. As we found on the way home from Kiev, Galya is willing to latch onto anyone being nice to her. That is fine to a point, but if it ends up causing problems with integrating our family...well, you can imagine we don't want to take that on. So balance in all things is key.
On the plus side, she ate all her veggies at dinner last night, even declaring them "num-num." I take that as a good sign having cooked said dinner. She's also picked up a couple of words in English. She can count to ten, say "hello" and "good morning" in the proper contexts. She still parrots more than actually uses words, but I can see signs she's working on it.
At daycare yesterday (which she handled with aplomb) the Russian-speaking son of the daycare provider did find out Galyna knows what school is, and so won't be surprised in January when we take her there. She also got to go sledding and ice skating. She'll be a natural-born Minnesotan in no time!
That's the update. Today is another chance to learn about this new family dynamic and our newest daughter, as well as for her to start meeting more family. We'll see how it goes, and as always pray it goes well.
For you and yours, I wish you a very Merry Christmas. As much as we are focusing on Galyna, Tierney and Amissa, this time of year is about remembering and celebrating another child and why he was born. Enjoy the season, the family and the traditions. But remember first the real reason of Christmas.
God bless,
Ron
Saturday, December 20, 2008
So How've You Been?
Tuesday
I think I left off with Tuesday (aside from the note that we arrived home.) If not, call me on it in the comments and I'll fix the problem. Tuesday did have a bit more detail than I posted then. The day started with doing some packing while waiting for Angelina to call. She did eventually, and picked me up to sign some papers. We went first to the courthouse, where she picked up the court decree. From there to the orphanage, where I had to sign two documents. For two signatures, I'd been gone nearly 90 minutes. Yep, this was going to be fun!
We left Makeevka, and on the way to Donetsk for some more paperwork I called Shannon to let her know that we'd be ready and back to the apartment by 3:00 to go pick up Galya. Angelina wouldn't be with us, but we told the orphanage folks while we were there what the plan was. In Donetsk, we went into a freezing building (side note: in Ukraine, apparently they will choose to do some heating water pipe repair when it's cold out) to get Galya's new birth certificate. This was another long wait, but I did get to do the signature thing so I felt like I was at least contributing. Then we headed off to one last errand - the passport. Unfortunately, the passport office was closed until 2:00 for the lunch break, so we stopped at McDonald's to kill some time and grab a bite to eat.
At two, we were able to get to the passport office, and by 2:30 we had everything the Ukrainian government owed us. Yippee! Angelina dropped me by the bus stop where the girls were going to meet me for the marshutka ride to the orphanage. She was going to go fax the passport page copy to the U.S. embassy so we'd be okay to get a visa interview on Wednesday.
Tuesday, Angelina proved her worth in all of these stops. Conversations in the past few days showed that many adoptive families can wait up to two weeks to get the passport. We got ours the day the court decree became official. It helps when the person you hired knows everyone and everything about the process. If you're ever considering adopting in Ukraine, let me know and I'll get you in touch with her.
So...as I said, it was cold. Even for us Minnesotans it was a bit chilly, and the marshutkas were running very full. There wasn't room for us on the first handful that went by while we waited, so we were all very glad when one came by with space.
And this brings us to the orphanage. I'll bet you're all expecting a big dramatic moment, tear-jerking narrative and emotional broadsides. We were too. It was nothing like that. In the dictionary next to anticlimactic you see a picture of Galya leaving the orphanage. After all these months (years, really) of time since we first heard of Galyna, the moment felt oddly normal. I'm guessing that seeing kids adopted out of the orphanage before made this something rather standard, but it was a surprisingly low-key event.
We went in and Julia, the social worker for whom I'd signed papers earlier in the day, was coincidentally by the door talking to someone else. She pointed up to where Galya was, and we walked up there to get her. She saw us, and apparently knew what we were there to do as she stopped her studies (yeah, we picked her up mid-school day) and grabbed the entirety of her earthly possesions: five little notebooks worth all of about $.30 that we'd picked up for her on the various Amstor stops. Not even a toothbrush. We brought some clothes with us, but she did walk out with a t-shirt and some tights that she was wearing that day.
I've never felt so unbelievably blessed and humbled to live in this country, by the way.
She said goodbye to her class, and a couple of the kids gave her hugs. Some of the teachers too, but it was "business as usual" for most of them. They all said goodbye and went back to their tasks. Two of the girls did seem excited that she was going to "America!" which I'd think is a big deal considering what we suspect they think about our country - that we're wealthy and far away from problems. One of two isn't bad. I for one will never complain about being poor compared to anyone here. Being firmly middle class in this country is being in the wealthiest population on the planet.
So we left, after a few hugs and two classrooms saying goodbyes, but it was the oddest departure I've known. There's been more emotion and hubub when someone leaves the place I work. But we walked back to the marshutka for the ride home. Galya was absolutely giddy, and happy. This was a good sign. We were able to get to the apartment in time for me to get the blog post out, and finish dinner before heading to the train station. We caught the train, Angelina and Shannon in one compartment, the girls and I in the other. The girls slept better on this train trip than on the first, but we still awoke in Kiev tired and unwashed. The train was about 80 degrees all night, which was okay, but a bit warmish for what we're used to. The highlight for the girls, I think, was eating some dried octopus snack thing that Angelina ordered from the attendant.
Wednesday
This post is overly long already, but I'll give Wednesday a go. Maybe I'll catch up the rest of the week tomorrow:)
We went from the train station to an international clinic which provides medical exams for children being adopted. Their report is part of the package of papers we needed to bring to the embassy in the hopes of getting the visa. We were there early, as the clinic didn't open until 9:00 and we'd come right from the train at 7:30. The girls hung out and colored in the hallway, and us adults tried to stay awake. The exam went well, and the doctor was about crying when she thanked Shannon for "adopting this little girl." Seems hard for many Ukrainians to understand the motive to help someone in this type of circumstance.
We went from the clinic to the embassy to drop off our last documents, and to confirm the visa appointment. As we'd sent ahead the documentation necessary to do the background check with Washington D.C., we were hoping that we could get the visa Wednesday. Even so, we weren't sure as nothing on the trip was really easy to predict. The visa interview was at 2:00, and we dropped off the paperwork by about 11:00, so we went to a little cafe to have lunch. It's interesting finding out about Galya's eating habits. She won't starve in our house, but she won't necessarily enjoy all our meals. We have yet to find a non-potato vegetable that she likes, and we eat lots of veggies. Let's hope she grows to love broccoli.
The visa interview was quick, and best of all they said they'd gotten the paperwork in time to do the background check - we got the visa the same day! This happens often, we gathered, but it isn't guaranteed. We were very glad to have our tax dollars going to something that the government does well!
This meant, too, that we were finally ready to hit the apartment. We were put up at the same building as the first visit in Kiev, and we went to the same restaurant for dinner as we'd done the first visit too. The girls all got the mashed taters/chicken dinner with the chicken dressed up with vegetables to look like a real chicken. Tierney took a picture, which I'll post in my next photo update. This went over well with Galya, except for (a) the vegetables, and (b) me not letting her drink all her pop until she'd finished her meal. Other than that, it was peachy. An early bedtime for the girls, and repacking for the plane for me, and it was off to the land of nod.
We awoke Thursday, but that's enough for this post.
TTFN,
Ron